Do you know what it’s like to physically have to help hold down my 3 year old every week for spinal taps? Or have to go into the emergency room every time he gets in the slightest fever when every ER visit means we will be there for Will race 4 food funny 2020 shirts and his port will be accessed? You know how easy it is to get a 3 year old to eat anything….well it’s even more fun trying to get him to take his daily chemo medication. It’s like all of the fun has just been sucked out of our lives.
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My 6 year old is great but he’s still 6 year old and doesn’t really care if my husband and Will race 4 food funny 2020 shirts. When my son was first diagnosed, we had many people and family offer to help with our older son. I am so done with friends or family telling us to “just let them know how they can help” and then never actually follow through on taking our older son for some fun. I am not expecting people to rearrange their own lives/schedules/families to help but God I feel like it’s such an empty promise when you say this and then never actually follow through.